Kai returned from surgery yesterday and was very peaceful. He was tossing and turning and pulling his blankets over his head just like he does at home (he’s notorious for putting his stuffed cat, named Cat, over his face so when I look at the monitor I just see these two beady stuffed cat eyes). As the day went on we noticed that he was still having some swelling so they took him back to have a CT scan to determine if the shunt was working as it should. The CT scan revealed that the shunt is working as it should, however he is still having trouble with his respiration rate and heart rate and hadn’t woken up from surgery. These are signs that it is the cancer causing him the swelling and issues in his brain.
We will be meeting with the neurosurgeons and the oncologists this morning to discuss more about possible next steps. But for now, we are thanking God for being so merciful and providing Kai with such peace and pain-free rest which he hasn’t had in so very long. He has been resting so peacefully and we are able to hold him and sit with him and last night I squeezed myself into his bed and got to sleep next to him and we had a peaceful night all together.
This morning he’s moving around a bit and opening his eyes from time to time and swatting at the nurses and doctors when they mess with him and so we’re just focusing on spending the day with our sweet baby Kai and plan to read stories and sing songs and help him think of all of his favorite things.
We love our little Kai monkey so much and our hearts are bursting and breaking at the same time with this love, and we just keep praying for comfort, peace, and healing and are so grateful for our time with the little guy who has incredible fashion sense (see below fashion ensemble of swaddle blanket wrap, diaper and dinosaur bib). And currently he’s refusing to keep his hospital shirt/gown on, I think he wants us to check out his muscles.