Time has become such a different word for us lately – it’s been only two weeks since this is all began which isn’t alot of time, but it’s felt like an entirely different lifetime for us. Every day, hour, minute has been something we can’t quite fathom but yet time keeps moving forward.

When we learned of the exact diagnosis of Kai’s disease and it’s current state in his body, we knew that time was not on our side. In these past two weeks, Kai has undergone many surgeries, procedures, tests, and many other things that have been in efforts to give us more time. More time with Kai, but really more time to see if we can do something to fight this disease. kai mohawk

Late last night and through this morning, we’ve learned that nothing here on earth will cure Kai. The disease has caused too much damage. God can heal Kai, and we still do believe in miracles, We actually have been reflecting on how many miracles we’ve witnessed throughout this experience. However we of course do not know if it’s God’s will to have him stay here on earth with us for a longer time, So we are now doing everything we can to ensure Kai is as comfortable and peaceful as possible.

As mentioned earlier, Kai has been resting peacefully. Kai has still been resting and we’ve been able to leave the ICU and onto the oncology floor where it’s more calm and peaceful and where they’ve set it up so family and friends can be comfortable and come and spend time with little Kai.

We’re cherishing this time. We got to spend hours holding him today, reading to him and talking to him. He’s surrounded by family and friends. It’s time well spent. I still hope and wish that Kai would wake up and have an amazing story to tell us and the cancer would be gone – what a powerful testimony this would be. But I also know that his story already is such a powerful testimony of Love, Life, and Faith. We love Kai so so much. So much. And we will continue to love him and be by his side and tell him of all the love and prayers for healing and peace that yall are giving him. Thank you so much for that gift!


27 Comments on Time

  1. jenny harrison
    March 20, 2014 at 11:50 pm (8 years ago)

    Miracles DO happen and Kai will win this! Prayers for you all everyday <3

  2. Jerry Bertrand
    March 20, 2014 at 11:53 pm (8 years ago)

    What an awesome pic:) Praying for this beautiful amazing little guy and for you all too.

  3. Alex Hernandez
    March 21, 2014 at 12:00 am (8 years ago)

    Miracles happen today I prayed in church for Kai to get healed and that the cancer leaves his little body. I wish I could hold him and read to him like I use to at school. Aki you are an amazing mom. I live you both so much please give Kia a hug and smooch from me. God is powerful I believe in miracles. ❤️

  4. Heidii Bugbee
    March 21, 2014 at 12:02 am (8 years ago)

    In addition to praying for a miracle for precious Kai, I am also praying for sweet and peaceful time for the three of you together right now. I know Kai must be so grateful for his incredibly strong parents right now.

  5. Cori Feldman
    March 21, 2014 at 12:17 am (8 years ago)

    Peace be with you all tonight, and prayers for many more precious moments.

  6. Krissa Britsch
    March 21, 2014 at 12:31 am (8 years ago)

    Your faith is also a testimony! Praying!

  7. Cori Park
    March 21, 2014 at 2:03 am (8 years ago)

    Praying for miracles and for peace as God wraps you all in his love.

  8. Natalie Amescua
    March 21, 2014 at 4:01 am (8 years ago)

    Praying for your sweet Kai AND you all! May God tuck Kai and your antiretroviral family beneath His mighty, sheltering, healing wings.

  9. Rebecca Pickett
    March 21, 2014 at 6:17 am (8 years ago)

    Praying for your sweet little Kai and your family. Time is such a precious thing. Praying for you lots of great time together. Praying for healing, strength, hope, peace and time.

  10. Joanne Uccello
    March 21, 2014 at 6:28 am (8 years ago)

    Sending love,peace,faith and hope to all of your precious family…

  11. Dee Dee Scott
    March 21, 2014 at 7:21 am (8 years ago)

    May the peace that passes all understanding be yours as you walk this path with your precious little Kai.
    My love and prayers

  12. Robin Voss
    March 21, 2014 at 8:12 am (8 years ago)

    You guys are amazing and so strong. You both always find the perfect words. Kai is completely adorable!! Praying that time will crawl and that you guys will have a million happy moments and many more pictures as cute as this one!!

  13. Amy Salinas
    March 21, 2014 at 8:30 am (8 years ago)

    You are a beautiful person, woman, friend and mother. I am so sorry for all that you are going through and wish too that one moment you wake up and all of Kai’s cancer is healed. Keep yourselves and Kai at peace and know that we and so many others in this world are praying for and thinking of you each and every moment.

  14. Ashley Thomas
    March 21, 2014 at 8:49 am (8 years ago)

    Aki, thank you and your dear family for reminding us how precious those small moments are that we so easily miss in the chaos of life. We hope beyond hope that you, Shawn, Kai and Maya have as many more of those special moments as possible, for as long as possible. Your struggles the past few weeks have reminded all of us not just of the power of prayer, but also the power of making every moment count, no matter how fleeting it might be. Bless you all, and thank you.

  15. Emily Allen
    March 21, 2014 at 9:13 am (8 years ago)

    Kai and Family:

    May the peace that passes all understanding wrap its loving and comforting arms around you. May God be glorified by your strength, courage, and faithfulness. And may our Father’s promise of eternal, heavenly life be ever near to your hearts.

    Our love and prayers to you all.

  16. Jamie Ivey
    March 21, 2014 at 9:29 am (8 years ago)

    Aki – I’m friends with Amanda & Angela and we have met a few times. I just wanted you to know that I have been thinking and praying about you guys since Amanda filled me in. Praying for a miracle with you and praying that the time you have right now seems to last forever. That TIME would seem longer than it is. Praying along with you today that he would wake up and have a crazy story to tell!

  17. Patricia Baker
    March 21, 2014 at 10:03 am (8 years ago)


  18. Elizabeth (Delgado) Zimmerman
    March 21, 2014 at 10:59 am (8 years ago)

    Sending so much love, strength and light.

  19. Susan Phillips
    March 21, 2014 at 11:50 am (8 years ago)

    Time IS a beautiful thing, a precious gift from God. I praise Him for giving that to you…to Kai… There are so many blessings to be discovered in God’s “Waiting Room” and it sounds like the Lord is guiding you in finding many “treasures” there. I praise Him for His Presence and Closeness, EVERY MOMENT. May God continue to be your Rock.

  20. Teresa Oliver Flores
    March 21, 2014 at 11:53 am (8 years ago)

    Thoughts and prayersof peace, comfort, and love for kai and your family. May God’s spirit be with you during this difficult time!

  21. Darlene Vera
    March 21, 2014 at 11:54 am (8 years ago)

    I am Miss Keisha’s mom. I have followed your journey through my daughter with such a heavy heart. I just want you to know your family is in my heart and prayers every day. I pray that God will take your family into his loving and healing arms and give you guidance and strength . God bless you all!

  22. lynn anderson
    March 21, 2014 at 12:21 pm (8 years ago)

    Reading your blog shows me how blessed Kai is to have you and Shawn as his parents. God gave him to you and finding any thing positive from what you and Kai has gone through is amazing. I will continue to prayer to the Great Healer to heal all of you. Lots of love being sent your way! Kai is touching people from all over this country and so are you. Hugs to you!

  23. Rhonda Holmes
    March 21, 2014 at 1:15 pm (8 years ago)

    Our soul waits for the Lord; he is our help and our shield. For our heart is glad in him, because we trust in his holy name. Let your steadfast love, O Lord, be upon us, even as we hope in you. Ps. 33:20-22

    Lifting your little warrior, Kai, up to the Father continually. may God continue to be your strength, your comfort and your hope.

  24. natalie hebert
    March 21, 2014 at 1:22 pm (8 years ago)

    I can share nothing better here than what Rhonda said below. Wrapping you and Shawn and Kai in warm thoughts, prayers, and hugs from Massachusetts.

  25. Debbie Williams
    March 21, 2014 at 2:37 pm (8 years ago)

    Aki and Shawn, sending love and strength.

  26. Molly Waterworth
    March 21, 2014 at 5:20 pm (8 years ago)

    Aki, it sounds like reading books is something Kai really enjoys and brings him comfort. I don’t know what format you use most, but here are two sites where you can read a wide variety kids books to him from the ipad or a laptop if you need more stories- http://robertmunsch.com/books http://www.wegivebooks.org/books
    You are continually in our thoughts and prayers. Lots of love, Molly and Bob

  27. Jeremy Bergeron
    March 21, 2014 at 5:55 pm (8 years ago)

    We stand in support of you guys. Love and strength are with you both.