Kai had a very restful night last night – so so thankful for this. He was kept under light sedation through the night and went in for another MRI of his brain this morning to see how everything looked after surgery. Praise the Lord that everything looked exactly how they expected. In the end, they were able to remove approximately 95% of the large tumor in his brain which is amazing.

They’ve sent the tissue from the tumor off for pathology testing and we’re hoping that by mid-week we will have a final diagnosis of what this disease is and can formulate the treatment plan. Right now they’re saying he probably needs a few weeks to recover from the brain surgery and get as much strength as possible before they will start treatment.

We got to see Kai’s eyes today (admittedly he shuts them as tight as possible when the nurses want to look at them, but I’m ok with that, shows me that strong Kai will and tenacity combined with the stubborn resolve that 2 year olds everywhere have perfected). He’s responded to questions (correcting me on the color of Thomas the Train) and telling Shawn to sing his bedtime songs. He even tried to sit up once when I came in the room.

Kai is also on less medications than yesterday and getting nutrients now from a feeding tube. The little guy definitely has some pain but he’s managing it really well and the nurses here are so good to him and us and trying to make him as comfortable as possible.

His recovery will be day by day, but he made great strides today. We just continue to pray for Kai to be healed and that he can rest and recover smoothly.

Thank you again so so much for all of your support. We truly do feel it and we tell Kai how many people are praying for him and thinking of him – when we start talking about all of you and saying the different names he tries to open his eyes, so we know he hears this. So thank you so much from all of us.

I first off want to thank Amanda and Caroline for being the communications team today 🙂 and posting updates for us. Thank you!

I came on here to write an update and the words are failing me and I can’t focus on the status facts, all I can think to write is thank you and share our gratitude – we are so overwhelmed. God has provided us so much….it’s just amazing. Thank you God so much.

I will never be able to express how much we appreciate each one of you……your prayers, connecting us with cancer experts and sharing your networks, researching, traveling to Austin, sitting with us, encouraging us, asking more people to join in our fight, bringing a feast of food, and so many more things. We could not have made it through today without you. Thank you, thank you, thank you. These words can’t express it enough.

We are all in this together,and we have begun the fight.

As the doctor said “we met our goals for the surgery”. They took out what they wanted to and this has improved Kai’s vital signs tremendously – it is so great to hear. And even while under the light sedation he tried to pull out his breathing tube – so he showed he is strong.

He will have a MRI tomorrow morning to confirm what the surgery accomplished and help start formulating the treatmemt plan. Our main focus right now is for him to recover and wake up well from the surgery.

So now, we will try to rest – a long road is ahead,  but for today we say thank you, thank you so very much.