posts related to brain cancer or ATRT


Kai was peaceful when he came back from surgery and was able to sleep for a few hours although was woken up frequently for checkups. 

Kai is struggling this morning, though. He is considerable pain, more so than we’ve seen him experience in the past. The staff is adjusting fluid drainage rates but his breathing is labored and O2 levels are low. Along with the lower heart rate he is displaying the same frightening symptoms as before. 

An MRI is supposed to happen so the doctors will get a good look at the inside of his head. 

Thanks for your thoughts, support, and prayers. 

Surgery Complete

Thank you so much for praying. 5326aae94db921936624bdb6
Surgery is complete and all went well. Kai is sleepy from pain meds, but awake.
He will have another MRI tomorrow sometime. Will update when we know more.
Thank you,

Surgery Tonight – Please Pray

Hi All,
Tonight in the ER, a CT scan showed that Kai has fluid on the brain which is creating the same kind of pressure and symptoms that the tumor did. 
In the next hour, he will be having surgery to drain that fluid and relieve that pressure. 
Please pray for a smooth surgery, for the doctor (Dr. Lee), for Kai to feel comfort and free from fear, and peace for Shawn and Aki.
I will update as soon as the surgery is over. 
Thank you,
Amanda Brown


We are headed to the ER right now because Kai has not been quite right and worse than yesterday and we are worries about the swelling. I am scared and I don’t know if this is dumb to be posting right now but wanted to ask all of you to pray for our little Kai. Thank you so much.