Movin’ on Up

…To the 4th floor that is. Good news! Kai moved out of the ICU this afternoon. Thank you for all of your prayers this morning for his pain, Kai had a better day and we had a number of great victories including the first smile we’ve seen in a long time.

He met with the different therapists today (speech, physical, and occupational) and the physical therapists helped him stand with our help and holding him up. It was brief but awesome to see.

It seems that resting is hard for him – I’m not sure if it’s pain or side effects of the medicines he’s on (I’ll ask this tomorrow) or a combination of so many things including the fact that it’s just hard to get good rest in the hospital. But, I think what’s hard, and I’m anticipating there is going to be so much more of this, is just feeling so helpless when he’s just moaning and not being able to do anything. He cries out “Mommy” or “Daddy” but at time like these we just can’t bring him comfort and of course as a parent that’s all you want to do, you want to “make it better”.  Nighttime seems to be the worst time for him (he’s been struggling to fall asleep for a long time now) but tonight his moaning sounds less of pain and more of just restlessness and agitation which is a good step!

The picture below is of when Kai’s friend Kailani came to visit today. Kai had a great visit and shared “apple squeezies” with her and the played a game of puzzles on the iPad together. And if you look close at this picture, Kai asked to hold Kailani’s hand and she helped him as the nurse was checking on his PICC line. Sweet, sweet moment. 🙂

Thank you again so very much for your support and prayers today! We are fumbling through this whole thing and trying to learn as we go and also try to just be Kai’s Mommy and Daddy which is taking on new meanings and challenges each day and so we thank God that He’s being our rock and that you all are helping us back up to cling to Him when we feel like we’re slipping or that we might let go. Thank you again.