Kai had a very restful night last night – so so thankful for this. He was kept under light sedation through the night and went in for another MRI of his brain this morning to see how everything looked after surgery. Praise the Lord that everything looked exactly how they expected. In the end, they were able to remove approximately 95% of the large tumor in his brain which is amazing.
They’ve sent the tissue from the tumor off for pathology testing and we’re hoping that by mid-week we will have a final diagnosis of what this disease is and can formulate the treatment plan. Right now they’re saying he probably needs a few weeks to recover from the brain surgery and get as much strength as possible before they will start treatment.
We got to see Kai’s eyes today (admittedly he shuts them as tight as possible when the nurses want to look at them, but I’m ok with that, shows me that strong Kai will and tenacity combined with the stubborn resolve that 2 year olds everywhere have perfected). He’s responded to questions (correcting me on the color of Thomas the Train) and telling Shawn to sing his bedtime songs. He even tried to sit up once when I came in the room.
Kai is also on less medications than yesterday and getting nutrients now from a feeding tube. The little guy definitely has some pain but he’s managing it really well and the nurses here are so good to him and us and trying to make him as comfortable as possible.
His recovery will be day by day, but he made great strides today. We just continue to pray for Kai to be healed and that he can rest and recover smoothly.
Thank you again so so much for all of your support. We truly do feel it and we tell Kai how many people are praying for him and thinking of him – when we start talking about all of you and saying the different names he tries to open his eyes, so we know he hears this. So thank you so much from all of us.
15 Comments on Recovering from Surgery – Eyes Open
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Aki we are praying for precious Kai and all of you! Praise The Lord for the results thus far and Kai’s strength! Hugs! Tamara & Derek
All great signs that he is on the mend! I am glad he’s able to rest, and hope you and Shawn have been able to a bit as well. We love you all, and we’ll keep praying!
Kai is an amazing boy with great strength and great will. I get the sense from your posts and what you tell us that he is fighting this all the way. Each and every moment of the day you all are in our thoughts and prayers. If you need ANYTHING, please do not hesitate to ask.
Thoughts for continued strength for the whole family,
With love
What a wonderful report Aki. Stay strong and don’t neglect yourself in the process…you are one strong and determined lady…no wonder Kai is a little warrior!! Prayers and thoughts continue for all of you.
Aki we are praying for Kai and all of you! We wish you all strength in this journey knowing Gods love and power are infinite! Ivan and Cori
This is great news. It sounds like he is already gaining back some strength (and offering some laughs with the Thomas the Train correction)! We are praying for all of you guys and sending love. Caroline’s friends, Kara & Michael
Thank you for sharing the positive update on Kai. If there’s anything you need please let us know. Chris & I keep sending thoughts of strength and recovery your way.
I’m so glad to hear that Kai did well in surgery. You are all in my thoughts and prayers for strength and continued recovery. God bless…
So happy to hear the positive new of the surgery – been thinking and praying for Kai since we found out (and for you, Shawn and Maya and the docs too). Will continue to do so too! (Even have family all across the nation, east cost to west coast and the midwest (which is really more of the middle of the country) praying too). Stay strong and as with all the others in town, we are totally here to help when you need it.
Yay Kai!!! You are such a warrior – can’t believe how cute you look despite a major surgery!!! Loved seeing your beautiful brown eyes and can’t wait for you to come home! Your sister can’t wait to play with you too! LOVE YOU!
Glad to hear that Kai is responding well after surgery. You and your whole family are in our thoughts and there are family and friends praying from the Northeast to Hawaii for all of you. We send you our love.
Glad to hear he doing better he is on my pray love you .
Praying complete healing for Kai and wisdom for his doctors as they make decisions for his treatment. Also praying peace for mommy and daddy.
Sending you all love and peace. Gia and I will say a prayer for Kai every night.